HORIZON-HLTH-2023-TOOL-05-09
Developing a Data Quality and Utility Label for the European Health Data Space -
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DIGITAL-2026-AI-09-DS-HEALTH-TOOL — Health: Data ingestion capacities and data services for the European Genomic Data Infrastructure in the European Health Data Space: data tools
DEP should conisder results from HE funded project (QUANTUM) as the project aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU.
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DIGITAL-2026-AI-09-DS-HEALTH-STORAGE — Health: Data ingestion capacities and data services for the European Genomic Data Infrastructure in the European Health Data Space: data storage and processing capacity
DEP should conisder results from HE funded project (QUANTUM) as the project aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU.
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DIGITAL-2026-BESTUSE-10-EHDS — Building capacity to deploy the EEHRxF and digital health services and systems to support the rights of citizens and reuse of health data under EHDS
Results of funded project (QUANTUM) should be considered as it aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU
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DIGITAL-2021-CLOUD-AI-01-FEI-DS-GENOMICS — Federated European infrastructure for genomics data
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
Objective is to enhance the European genomic data infrastructure, project should build on available results
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DIGITAL-2024-CLOUD-DATA-AI-06-GENOME — 1+ Million Genomes: sustainability and uptake
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
Synergies with the project B1MGplus funded under this topic need to be considered
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DIGITAL-2023-CLOUD-AI-04-GENOME — Genome of Europe
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
Synergies with the project Genome of Europe funded under this topic need to be considered
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HORIZON-HLTH-2023-TOOL-05-04 — Better integration and use of health-related real-world and research data, including genomics, for improved clinical outcomes
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
DEP proposal can build on results of HE topic for best practices in the context of integration of health data from multiple sources by linking real-world and clinical research data
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DIGITAL-2022-CLOUD-AI-02-CANCER-IMAGE — Federated European infrastructure for cancer images data
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
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HORIZON-MISS-2024-CANCER-01-02 — Support dialogue towards the development of national cancer data nodes
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
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HORIZON-HLTH-2023-DISEASE-07-01 — European Partnership on Rare Diseases
Connected via DIGITAL-2026-AI-09-DS-HEALTH-TOOL, not directly to the current topic.
Relevant projects to consider in proposals Research outcomes, data assets, and coordination structures developed under the European Partnership on Rare Diseases can directly enable the deployment and scaling of AI- and data-driven digital health tools, ensuring continuity from research to implementation and maximising EU-level impact.
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DIGITAL-2024-CLOUD-AI-06-HEALTHRECORD — Demonstrating the in-service use of the European Electronic Health Record Exchange Format (EEHRxF) in healthcare settings
Connected via DIGITAL-2026-BESTUSE-10-EHDS, not directly to the current topic.
Activities and results of the funded project (i2X) under this topic should be considered
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DIGITAL-2024-CLOUD-AI-06-HEALTHACCESS — Supporting patients’ access to their health data in the context of healthcare services for citizens across the EU
Connected via DIGITAL-2026-BESTUSE-10-EHDS, not directly to the current topic.
Consider synergies with the funded project (MyHealth@MyHands) under this topic
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Call text (as on F&T portal)
View on F&T portalExpected Outcome:
This topic aims at supporting activities that are enabling or contributing to one or several expected impacts of destination 5 “Unlocking the full potential of new tools, technologies and digital solutions for a healthy society”. To that end, proposals under this topic should aim to deliver results that are directed towards and contributing to all of the following expected outcomes:
- Data Users (researchers, innovators, regulators, policymakers, clinicians) are able to identify the most relevant datasets that meet their specific needs through a label describing accurately and in a standard way the quality and utility dimensions of the datasets, as proposed in the legal provisions of the European Health Data Space (EHDS).
- Data holders have clear specifications for dataset quality and utility labelling to comply with the requirements proposed in the EHDS legal provisions. In addition to that, data holders have access to a maturity model with the requirements a dataset needs to fulfil to achieve higher levels of data quality and utility.
- European and National public funders ensure that the datasets, for which they provided funding for the creation and curation of, are more widely available, furthering their reuse for secondary uses as proposed in the EHDS legal provisions (research, innovation, regulatory work, policymaking, personalised medicine).
- The European Commission has access to a set of specifications for the data quality and utility label supporting the implementation of the EHDS legal provisions.
Scope:
A vast quantity of health datasets exist across Europe, from multiple sources (individual care, medical registries, social, environmental behavioural, wellbeing, clinical trials, research, administrative, etc.), and of varying quality. This represents a tremendous opportunity for the reuse of this data for purposes other than for the one for which they were originally collected and spur the development of better prevention strategies, diagnoses, treatments and care plans.
The European Health Data Space (EHDS) will provide a common EU framework for secondary use of health data such as research, innovation, regulatory purposes, policymaking and personalised medicine. It will enable data users to have access to large amounts of health data through health data access bodies empowered with the EHDS legal provisions to overcome existing limitations regarding the processing of health data for secondary uses.
To support data users in the discovery and selection of datasets for their purposes, there is a growing need to develop a data quality and utility framework to articulate the characteristics and the potential usefulness of datasets. This framework will also support data holders in identifying and addressing areas of improvement which can, in turn, allow for wider and better use of these datasets.
Several initiatives have developed or are developing guidelines and recommendations for health data quality, however, these typically focus on specific data types (i.e. 1+ Million Genome Initiative[1]) or areas of applications (i.e. European Medicines Agency – EMA and Heads of Medicines Agencies’ Big Data Steering Group activities to support medicines regulation[2]). Similarly, previous studies and initiatives have addressed specific dimensions of ‘data quality’ for health data but none are offering a framework suitable for the breadth of data types and encompassing the quality and utility elements proposed in the EHDS legal provisions. The proposed framework should take into account the various needs of data users whilst at the same time avoid becoming an excessive burden on data holders which will need to produce the data quality and utility label.
Proposals should address all of the following activities:
- Perform a mapping of existing data quality and utility principles/initiatives/frameworks (i.e. EMA/HMA Big Data Stakeholders Group Data quality efforts, TEHDAS Data Quality Working Group[3], EOSC-LIFE[4] Health Data Research UK’s data quality and utility framework[5], and relevant data principles, resources and tools (FAIR, FAIR Cookbook, etc.)[6];
- Conduct various stakeholder consultations, integrating all relevant data users and data holders of health data, EHDS Health Data Access Bodies (HDABs) and other relevant actors to validate data user needs and adequately take into account relevant initiatives when developing the proposed framework;
- Develop a framework (set of technical specifications) for the data quality and utility label that supports the implementation of the EHDS legal provisions and the roll out of the label by the data holders and EHDS Health Data Access Bodies;
- Pilot and evaluate the use of the proposed framework (as a label and as a maturity model) on a datasets sample representing the wide-ranging data types (such as electronic health records, genomics datasets, medical registries, administrative data, etc.) and taking into account the needs of all data users identified.
- Develop recommendations for the successful implementation and adoption of the data quality and utility label and maturity model across European Member States considering the maturity levels regarding secondary of health data.
The consortium should be composed of representatives from data users, data holders, health data access bodies, and other relevant stakeholders to the scope of secondary use of health data, adequately covering the diversity of heath data types and users’ needs across European Member States.
[1] https://b1mg-project.eu/work-packages/wp3
[2] https://www.ema.europa.eu/en/about-us/how-we-work/big-data
[3] https://tehdas.eu/packages/
[5] Development of a data utility framework to support effective health data curation: https://informatics.bmj.com/content/28/1/e100303?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
[6] See definition of FAIR data in the introduction to this work programme part.
News flashes
Call HORIZON-HLTH-2023-TOOL-05
We recently informed the applicants about the evaluation results for their proposals.
The results of the evaluation are as follows:
Number of proposals submitted (including proposals transferred from or to other calls): 170
Number of inadmissible proposals: 1
Number of ineligible proposals: 1
Number of above-threshold proposals: 71
Total budget requested for above-threshold proposals: EUR 634,646,986.
Call HORIZON-HLTH-2023-TOOL-05
We recently informed the applicants about the evaluation results for their proposals.
The results of the evaluation are as follows:
Number of proposals submitted (including proposals transferred from or to other calls): 170
Number of inadmissible proposals: 1
Number of ineligible proposals: 1
Number of above-threshold proposals: 71
Total budget requested for above-threshold proposals: EUR 634,646,986.
Call HORIZON-HLTH-2023-TOOL-05
We recently informed the applicants about the evaluation results for their proposals.
The results of the evaluation are as follows:
Number of proposals submitted (including proposals transferred from or to other calls): 170
Number of inadmissible proposals: 1
Number of ineligible proposals: 1
Number of above-threshold proposals: 71
Total budget requested for above-threshold proposals: EUR 634,646,986.
Call HORIZON-HLTH-2023-TOOL-05
We recently informed the applicants about the evaluation results for their proposals.
The results of the evaluation are as follows:
Number of proposals submitted (including proposals transferred from or to other calls): 170
Number of inadmissible proposals: 1
Number of ineligible proposals: 1
Number of above-threshold proposals: 71
Total budget requested for above-threshold proposals: EUR 634,646,986.
Call HORIZON-HLTH-2023-TOOL-05 closed on 13 April 2023. 170 proposals were submitted. The breakdown per topic is:
- HORIZON-HLTH-2023-TOOL-05-01: 8 proposals
- HORIZON-HLTH-2023-TOOL-05-03: 65 proposals
- HORIZON-HLTH-2023-TOOL-05-04: 49 proposals
- HORIZON-HLTH-2023-TOOL-05-05: 23 proposals
- HORIZON-HLTH-2023-TOOL-05-08: 24 proposals
- HORIZON-HLTH-2023-TOOL-05-09: 1 proposals
Evaluation results are expected to be communicated on Friday 04 August 2023 at the earliest.
Call HORIZON-HLTH-2023-TOOL-05 closed on 13 April 2023. 170 proposals were submitted. The breakdown per topic is:
- HORIZON-HLTH-2023-TOOL-05-01: 8 proposals
- HORIZON-HLTH-2023-TOOL-05-03: 65 proposals
- HORIZON-HLTH-2023-TOOL-05-04: 49 proposals
- HORIZON-HLTH-2023-TOOL-05-05: 23 proposals
- HORIZON-HLTH-2023-TOOL-05-08: 24 proposals
- HORIZON-HLTH-2023-TOOL-05-09: 1 proposals
Evaluation results are expected to be communicated on Friday 04 August 2023 at the earliest.
Opening date: 2023-01-12 (3 years ago)
Closing date: 2023-04-13 (3 years ago)
Procedure: single-stage
Budget: 4,000,000
Expected grants: 1
Contribution: 4,000,000 - 4,000,000
This call topic has been appended 8 times by the EC with news.
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the submission session is now available...
HORIZON-HLTH-2023-TOOL-05
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Call published · 30 Sep 2024 (2 years ago)
All expected milestones for this call have passed.
Work programme published
07 Oct 2022 · est.
Call opens
12 Jan 2023
Call closes
13 Apr 2023
Outcome expected
13 Sep 2023 · est.
Grant agreement signed
13 Dec 2023 · est.
Call published
30 Sep 2024
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Work programme published Estimated
07 Oct 2022 · 4 years ago
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Call opens
12 Jan 2023 · 3 years ago
Submissions can be made from this date.
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Call closes
13 Apr 2023 · 3 years ago
Deadline to submit a proposal.
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Outcome expected Estimated
13 Sep 2023 · 3 years ago
The maximum time to inform applicants of the evaluation outcome is five months after the call closes.
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Grant agreement signed Estimated
13 Dec 2023 · 2 years ago
The maximum time to sign the grant agreement is three months after applicants are informed of the outcome.
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Call published
30 Sep 2024 · 2 years ago
This topic was first published in TopicTree.
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